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Aged Care Advocacy Line (toll free)1800 700 600

Welcome to our 2020–2021 Annual Report.

Supporting Your Right to Quality Care

We are proud of what we have achieved this year. Amidst yet more lockdowns and restrictions, we grew stronger. We continued to do what we do best: empower and support older Victorians to stay in control, stay connected, make informed decisions, and, most importantly, uphold their human rights.

This report highlights our activities for the 2021–2022 financial year.

Our knowledge, skills, services and staff have grown, and we are excited about our future direction and impact.

Elder Rights Advocacy staff and volunteer team, 2021–2022.
A rapid expansion and recruitment plan has commenced, concentrating on frontline services to older people throughout Victoria by doubling the number of advocacy staff.

Leadership Team

Philippa Campbell
CEO

Debra Nicholl
Programs Manager

David White
Executive Officer

Business Administration

Freda Ousalkopoulos
Administration Assistant

Bec Housden
HR (from June 2022)

Tanya Wasylewski
Marketing and Communications Coordinator

Information and Education

Joanna Parlapiano
Community Information and Education Co-ordinator

Aged Care Navigator

Cassie Browne
Advocate – Aged Care Navigator Team Leader (until Dec 2021)

Lee Nicholls
Advocate – Aged Care Navigator (from October 2021)
Team Leader (from Dec 2021)

Diane Jakin
Advocate – Aged Care Navigator (from February 2022)

Community Visitors Scheme

Megan Collisson
Coordinator Community Visitors Scheme

Mairead McGowan
CVS Project Officer (from August 2021)

Intake Team

Michaela Peake
Intake Team Leader

Allison Drinkwater
Intake Advocate (from September 2021)

Terri Humphries
Intake Advocate (from October 2021)

Folake Onademuren
Intake Advocate (from April 2022)

Advocacy Team

Kaylene Cahill
Advocacy Intake Team Leader

Sue Petrini
Advocacy Intake Team Leader

Catherine Bedggood
Advocate (from November 2021)

Jessica Cottle
Advocate (from November 2021)

Kate Dalton
Advocate

Christine De Bono
Advocate (from November 2021)

Christine Hopwood
Advocate

Hayley Johnson
Advocate (from November 2021)

Dominic Lawson
Financial Advocate (from June 2022)

Naika May
Advocate (from November 2021 – March 2022)

Brenda McAuley-Hines
Advocate (from April 2022)

Donna McEachran
Advocate (until August 2021)

Pauline Meaney
Advocate (until August 2021)

Maria Sarmas
Advocate (from September 2021 – June 2022)

Felicity Thyer
Advocate (from September 2021)

Rosemary Wilkinson
Advocate (from October 2021)

Arati Vidyasagar
Advocate, Diversity & Inclusion

I was listened to, my rights were explained and I was guided in the right direction to achieve a result I was happy with.

Author

Meet the Board
Elder Rights Advocacy operated with a seven-person Board in 2021-2022. Big thanks to Mary Anne, Lis, Naresh, Caroline, Hacy, Jan and Sonia for their efforts.

Mary Anne Hunt, President

Joining the Elder Rights Advocacy Board in 2012, Mary Anne became Chair in 2014. With significant leadership experience in a range of communities and organisations, including health, family, disability, aged services and vocational education, she has a passion for the rights of older people to the highest quality of care. Since 2018, she has also served as Chair of OPAN.

Elisabeth Grove, Secretary

A Board member since 2013, Lis has worked as a teacher, researcher, editor and language consultant to community organisations. Direct experience of the aged care system through family members has shaped her concern for the human rights of older people, particularly the need for better information, advocacy and support.

Naresh Raja, Treasurer

A qualified accountant, Naresh has served as Elder Rights Advocacy’s Treasurer
for several years. With a focus on implementing sound financial management and reporting systems both in Australia and abroad, he is currently Chief Financial Officer for six companies. He is also Treasurer of the Springvale-based charitable organisation, Friends of Refugees.

Caroline Carroll OAM, Director

Caroline is the Community Education Coordinator at Open Place, the Victorian service for Forgotten Australians, and Chair of the national peak body, the Alliance for Forgotten Australians. A regular conference speaker and participant in national reference groups, including the National Apology to Victims and Survivors of Institutional Child Sexual Abuse, Caroline joined the Board in 2019 with a particular concern for Forgotten People in aged care.

Hacy Tobias, Director

Hacy Tobias joined the Board in April 2021, wanting to make a difference in the Aged Care sector. Hacy brings a wealth of experience in governance, risk management, human resources, transformation and organisational change, having reported to boards as a general manager for over 20 years in these areas.

Janis Porter, Director

Jan joined the Elder Rights Advocacy Board in April 2021, with a background in the Federal and Northern Territory Public Service, the mining industry, merchant banking, consultancy and tourism. Most recently, she has been an advocate for refugees and a Consumer Representative on a major project for Breast Screen Victoria. Jan is a strong believer in human rights and equity, particularly for those whose voice is not always heard.

Sonia Di Mezza, Director

Sonia is the CEO of Loddon Campaspe Multicultural Services, a solicitor, and human rights lawyer. She has been the Deputy CEO of the ACT Disability, Aged and Carers Advocacy Service (ADACAS), leading the Older Persons’ Advocacy team for over eight years in Canberra. Sonia specialises in advocating for the rights of people from culturally and linguistically diverse backgrounds.

I am so thankful for your support. You are all just magic, and I don’t know what I would have done without your help.

Author

Message from the President and the Chief Executive Officer

Mary Anne Hunt, President and Philippa Campbell, Chief Executive Officer

On behalf of the Elder Rights Advocacy Board and staff, it is our pleasure to present the 2021-2022 annual report.

This year commenced with COVID-19 yet again dominating our lives and impacting everyone. Sadly older people have suffered the most, particularly those in institutional settings. They have endured restrictions for much longer than the rest of the community, above all, limitations on freedom of movement.

Many factors reduce the quality of life of older people, the most insidious of which is ageism. Ageism, prejudice or discrimination based on age, leads to poorer health, social isolation and earlier death. This has been the reality for many older people in residential care, especially throughout the pandemic; they experience institutional ageism daily. We know that transformational change will take time. We also know that change takes place by dealing with one issue at a time and by ensuring that learnings from every issue lead to sustainable systemic and behavioural change.

Much of the work of Elder Rights Advocacy involves combatting ageism and calling it out when we can, at all levels, whether it is intentional or unintentional. As the new aged care system is developed, we must seek to ensure that it is socially just and inclusive, enshrines human rights at its core and eliminates ageism.

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It has now been 12 months since the release of findings of the Royal Commission into Aged Care Quality and Safety, but little has changed for people in aged care. However, the significant increase in Elder Rights Advocacy’s funding from the Royal Commission has enabled us to develop a growth strategy for the next three years.

A rapid expansion and recruitment plan has commenced, concentrating on frontline services to older people throughout Victoria by doubling the number of advocacy staff. The plan for the next financial year is to recruit to specific areas of Victoria where gaps in service provision have been identified. Our home/office hubs, or points of access, will then be located across the state, ensuring greater outreach of our services, particularly in regional and rural areas. This will be the final step in implementing the recommendations of our Service Model Review.

We look forward to continued participation in both state and national conversations about ageism, human rights, elder abuse and neglect, and to ensuring that older people’s voices are heard and valued. This will require the redesign and reform of the aged and community care system to support the rights of older people to their chosen lives.

Thanks

We thank our skilled and passionate staff team for their ongoing work and commitment to ensuring that older people are supported, and their voices are heard.

We thank our Ambassador and Peer Education Volunteers for their commitment to ensuring that older people know about their rights and where to get help. We also thank them for educating us so that we can respond to the diverse needs of their communities in more meaningful ways.

We thank our dedicated Community Visitor Scheme (CVS) volunteers, who visit many lonely and isolated people in residential care and in their own homes. It has again been a challenging year due to COVID-19; however, they continue to bring connection and friendship to older people and also benefit from the joy of volunteering.

We thank our funders for their commitment to continued investment in the National Aged Care Advocacy Program (NACAP) and our OPAN partners.

Finally, we thank the members of our volunteer Board of Management, who have continued to provide strong governance and commitment to the organisation. Their support for the vision of the CEO and staff is essential to the growth of Elder Rights Advocacy into an effective statewide service for ALL older Victorians.

"

We thank our skilled and passionate staff team for their ongoing work and commitment to ensuring that older people are supported, and their voices are heard.

Advocacy – Streamlining the Intake Process

Michaela Peake, Intake Team Leader

Our Intake Team has grown since the recruitment of one Intake Advocate in March 2021, now comprising three Intake Advocates and a team leader, with combined backgrounds in case management, homelessness, emergency services and carer support.

Having a specific Intake Team has been foundational in realising the future directions of our Service Model Review. By standardising responses to callers, a significant part of the workload for Advocates has been eased. At the same time, the team has identified trends and collected information to inform Elder Rights Advocacy’s systemic advocacy. Organisational responses to ongoing COVID-19 restrictions in aged care, the changes to the SCHADS award for community aged care workers, and more recently, the vacuum caused by the withdrawal of many Victorian municipal councils from CHSP service delivery are just some examples of systemic issues raised.

As the entry point to the organisation, the Intake Team provides a person-centred and rights-based response to older people, including those experiencing elder abuse, as well as regular secondary consultation to providers seeking advice on the rights of older people and their own responsibilities. The 1,484 information sessions for Q4 of 2021–22 were predominantly delivered by the Intake Team. They also included information and assistance on accessing aged care services through our Navigator trial and social support through our Community Visitors Scheme.

Due to the complexity of the work and a large number of enquiries, the Intake Team faces the constant challenge of meeting competing demands: to provide a consistently responsive service to older people, while effectively managing the influx of calls and emails. Balancing the quality of the work with the number of cases is inherent in such work. Building the team’s responsiveness and reach will be a continued focus.

Top Issues of Advocacy

1

Accessing care/finding providers
(includes equipment and specialised services)

2

Financial issues/Home Care packages

3

Care Planning

4

COVID-19

5

Choice and decision making

6

Hydration/Nutrition

Advocacy – Network Participation
Our advocacy staff have been part of a number of networks that help shape and provide support for older people across Victoria.

Financial Elder Abuse Trial
We continued to participate in the Financial Elder Abuse Trial in Victoria Police District WD5, which encompasses the local government areas of Mount Alexander, Macedon Ranges, Greater Bendigo, Campaspe
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We continued to participate in the Financial Elder Abuse Trial in Victoria Police District WD5, which encompasses the local government areas of Mount Alexander, Macedon Ranges, Greater Bendigo, Campaspe, Loddon and Central Goldfields.

The Financial Elder Abuse Trial was established in April 2020 in response to Recommendation 155 of the Royal Commission into Family Violence.

The trial was implemented to inform improved responses by Victoria Police to financial elder abuse. In this financial year, a review of data and key stakeholder experiences has been conducted. It is now being examined by Victoria Police senior management for implementation strategies beyond the trial sites.

Everybody’s Business Elder Abuse Prevention Network
Elder Rights Advocacy has also been part of the Everybody’s Business Elder Abuse Prevention Network, covering Victoria’s South Western District, since February 2022. The network held a
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Elder Rights Advocacy has also been part of the Everybody’s Business Elder Abuse Prevention Network, covering Victoria’s South Western District, since February 2022. The network held a lunch for the Warm Safe Home project for World Elder Abuse Awareness Day on 14 June 2022, in conjunction with the Archie Graham Community Centre in Warrnambool. This occasion offered attendees a chance to come together and acknowledge World Elder Abuse Awareness Day.

The South Coast Primary and Community Partnership
The South Coast Primary and Community Partnership (SCPCP) is a voluntary partnership of health and community organisations working together to achieve better health
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The South Coast Primary and Community Partnership (SCPCP) is a voluntary partnership of health and community organisations working together to achieve better health outcomes for the Bass Coast and South Gippsland local government areas. A monthly network meeting enables workers from a vast array of organisations in the Gippsland region to gather and share their projects and provide solutions and mutual support.

Participating in this network has resulted in several referrals to Elder Rights Advocacy to support older people in the community, including gaining access to aged care services and Advocacy.

ACQSC Expert Advisory Group on the Nutrition and Dining Experience
Our work with the Aged Care Quality and Safety Commission (ACQSC) Expert Advisory Group on the Nutrition and Dining experience in residential aged
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Our work with the Aged Care Quality and Safety Commission (ACQSC) Expert Advisory Group on the Nutrition and Dining experience in residential aged care has continued this year.

In conjunction with other state and territory advocacy organisations, we conducted a food survey, designed
by the Nutrition and Dining Expert Advisory Group, of people in residential aged care. The survey included questions on the food quality and the dining environment from the resident’s perspective. The information collated from the surveys has contributed to the creation of fact sheets for aged care providers to support them in providing quality food and a positive dining experience.

We also presented the residents’ perspectives on food quality and dining experience at a webinar for quality assessors from the Aged Care Quality and Safety Commission.

North and West Metropolitan Region Palliative Care Consortium
The North and West Metropolitan Region Palliative Care Consortium includes community palliative care services, public hospitals and the North
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The North and West Metropolitan Region Palliative Care Consortium includes community palliative care services, public hospitals and the North Western Metropolitan Primary Health Network. The objectives and purpose of this group include the use of research and experiential knowledge, at both medical and aged care levels, to strengthen the provision of palliative care to older people receiving aged care.

Elder Rights Advocacy has trusted relationships with many family members of older people who have died while in residential care. These family members were able to share their experiences with members of the consortium, which has supported the growing understanding of current palliative care service delivery in residential aged care.

Our input has ensured that consortium members maintain a rights-based approach when developing training tools for staff, such as ensuring that consultation is undertaken at all times with the resident and/or their family, as residents approach their end of life.

Dementia Support Network
The Bendigo Dementia Service Providers Network meets quarterly and encompasses stakeholders across the Bendigo area. Dementia Australia auspices the meetings, and participants include dementia, health
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The Bendigo Dementia Service Providers Network meets quarterly and encompasses stakeholders across the Bendigo area. Dementia Australia auspices the meetings, and participants include dementia, health and direct service providers.

These meetings promote good connections with local service providers, enhancing referral pathways and increasing practice knowledge.

Our participation and contribution to this network have resulted in referrals to Elder Rights Advocacy, as well as enabling us to refer our clients to appropriate providers when required.

I can hear in your voice that you care.

People like Elder Rights Advocacy staff are heroes… not all heroes wear capes.

Author

Volunteers

During the 2021–2022 Financial Year, our volunteer base expanded. Alongside the Community Visitors Scheme (CVS), we introduced our Ambassador program, recruiting representatives from diverse community groups to tell us about their needs and how we can improve our services to meet these needs. We also ran a Peer Education Pilot, which will be completed in July 2022.

Community Visitors Scheme

Megan Collisson, CVS Coordinator

This year, the Community Visitors Scheme (CVS) marks 30 years of supporting older people throughout Australia. We are very proud to be part of a wonderful program which connects people in our communities.
COVID-19 continues to impact the lives of many. Loneliness, isolation and the need for social connections are ever-present. Our staff and volunteers worked tirelessly to support older community members as demand for the CVS increased in the 21–22 Financial Year.

Many of our volunteers donned PPE and willingly completed regular COVID-19 testing requirements to ensure they could continue visiting and maintaining their connections. Their commitment and adaptability have driven the success of the CVS program, and we express our gratitude for their efforts in providing support, care and empathy to older members of the community.

CVS highlights the wisdom, experience and resilience of older people, and we are honoured to have these insights shared with us. During National Volunteer Week, we highlighted the thoughts and experiences of our volunteers on Elder Rights Advocacy’s Facebook page.

It is a privilege to be part of an incredible program and to work with an inspirational team of volunteers and staff who have such positive impacts on the lives of many. We are immensely grateful for their efforts and look forward to continuing providing CVS to our older community members throughout regional Victoria.

Community Visitors Scheme stats

10000 +

Total Contacts

10000 +

Face to face visits

10000 +

Phone contacts

10000 +

Face time or Skype contacts

10000 +

Letters or emails

"

It is heart-warming to be a part of a program that makes a difference in older people’s lives. Social connection is so incredibly important and I think its significance in our lives has been highlighted more than ever during the pandemic. I feel grateful to have been paired with Susan – her intelligence and wit lend me a different perspective on life when I visit her. I enjoy hearing about Susan’s experiences over the last eighty years, she is a very genuine person and we would all do well to take a leaf from her book! Thank you CVS for the opportunity to be connected with someone so lovely. I would recommend being a part of this program to anyone who has an interest in preventing social isolation in the community and even a little spare time, as it truly is so rewarding.

Georgia, CVS volunteer with Elder Rights Advocacy

Feedback from our volunteer Georgia encapsulates the thoughts of many of our volunteers on the importance of CVS to everyone involved.

Volunteer Programs

The Ambassador Program

Arati Vidyasagar, Advocate, Diversity and Inclusion

Recruitment for our Ambassador Program began in 2020 as part of the Reaching Out project, led by Dr Catherine Barrett of Celebrate Ageing. The Ambassador Program works with leaders from diverse community groups to better understand their needs. Listening to these communities means that we can design our service delivery to be safer and more accessible, as well as educate aged care service providers on best practices.

Our first Ambassadors were introduced on our website and Facebook page during October 2020 (Seniors Month); and the growing team was featured throughout the year.

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Recruitment for our Ambassador Program began in 2020 as part of the Reaching Out project, led by Dr Catherine Barrett of Celebrate Ageing. The Ambassador Program works with leaders from diverse community groups

to better understand their needs. Listening to these communities means that we can design our service delivery to be safer and more accessible, as well as educate aged care service providers on best practices.

Our first Ambassadors were introduced on our website and Facebook page during October 2020 (Seniors Month); and the growing team was featured throughout the year.

Some of the highlights from our Ambassador Program have been:

  • Delivering information sessions to staff as part of staff training and capacity building
  • Kathy Mansfield, Cheryl Durston and Dalal Sleiman attending the Elder Abuse Conference in February
  • Dalal Sleiman organising an information session to the Chaldean Community
  • David Menadue introducing us to peak LGBTIA+ organisations.‘Meet and greets’ (some in person!) have been held with most of the peak organisations connected to aged care. These meetings also included some fun – an afternoon tea and dance organised by All the Queens Men in Collingwood Town Hall. After the ‘knees-up’, Elder Rights Advocacy was invited to have an information stall at future socials.

Learn more about our Ambassadors:
https://elderrights.org.au/what-we-do/diversity-and-inclusion/ambassadors

Peer Educator Pilot

Joanna Parlapiano, Community Information and Education Coordinator

We undertook an 18-month Peer Education pilot project focusing on special needs groups as identified in the Aged Care Act (1997). Special needs groups are National Aged Care Advocacy Program (NACAP) target groups, as individuals from these groups may need additional support to understand, choose and access aged care services.

The pilot commenced in May 2021 and will be completed in July 2022. We worked with the Forgotten Australians

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We undertook an 18-month Peer Education pilot project focusing on special needs groups as identified in the Aged Care Act (1997). Special needs groups are National Aged Care Advocacy Program (NACAP) target groups, as individuals from these groups may need additional support to understand, choose and access aged care services.

The pilot commenced in May 2021 and will be completed in July 2022. We worked with the Forgotten Australians community to co-design material that addressed their barriers to accessing and understanding aged care services and was meaningful to the community. This material was then used by the Peer Educators to deliver key messages at information sessions for the Forgotten Australians community.

The pilot demonstrated that the point of difference with these sessions was having a member of the community deliver the information to their community. This resulted in instant connection and a sense of trust: ‘she is one of us’. Also, a key to a successful connection was simplifying the messaging and communicating meaningfully, using relevant examples and material designed specifically for the group.

The evaluation found that, following an information session, participants had increased knowledge about their aged care rights. Many have since contacted us for information and support.

Further, it was critical for Elder Rights Advocacy staff to have trauma-informed training. Being educated by the project participants and hearing their ‘lived experience’ stories has been a privilege and framed much of the work.

Resources have been developed, including the ‘bookmark’, and will be rolled out as
we look at the next stage. We have also added the Forgotten Australians wattle emblem to our resources, alongside the Aboriginal and Torres Strait Islander flags and the LGBTIQ+ flags, to reflect our commitment to being a safe and inclusive service for Forgotten Australians.

"

I delivered the sessions using the guide; in addition, I spoke to the participants in everyday language, for example not using words such as outcome, and using personal language, e.g. As Forgotten Australians you have the right to … I also repeated the material a number of times.

Forgotten Australians Peer Educator

Aged Care Navigator

Lee Nicholls, Team Lead Aged Care Navigator

Now in its third year, the Aged Care Navigator pilot program continued to adapt and respond to the challenges of ongoing COVID-19 lockdowns, social distancing requirements and the changing aged care environment. A major challenge for older people has been the impact on service providers of additional waitlists for Commonwealth Home Support Program services and many Home Care Package providers being unable to take on new clients. Many people have not received much-needed in-home support.

Our focus has remained on prioritising the needs of older people by providing information about aged care options and support at a practical level, depending on individual needs.

Recruiting an additional team member has helped increase our reach and provide much sought-after face-to-face visits and community information sessions.

The Northern and Western Metro area continues to be busy, with face-to-face information sessions at several new locations and new networking opportunities. Older People from CALD backgrounds have been supported by interpreter services to enable conversations with our team in several languages, including Mandarin, Punjabi, Hindi, Sinhalese and Italian.

Our Navigators have also reached out to rural regions in Barwon South West, holding information sessions at community events in Hamilton, Warrnambool, Camperdown and Mortlake.

The data collected by the Navigator program will inform the development of a new program which will continue to support older people to access aged care services.

We remain committed to helping older people access care that suits their needs and allows them to live independently at home.

Aged Care Navigator stats

10000 +

Total service hours

10000 +

New cases

10000 +

Closed cases

10000 +

Number of information sessions

10000 +

Total number of attendees

Thanks so much for such a great session today, it was insightful and such valuable learning for us and our volunteers.

Author

Education

Joanna Parlapiano, Community Information and Education Coordinator

Our education program continues to grow and develop, supported by our rapidly expanding workforce. COVID-19 restrictions resulted in even more online sessions, and interest from community groups, volunteers and university students entering the aged care workforce helped to increase our reach and messaging. Feedback from participants has been highly positive, and credit must go to our fantastic group of professional Advocate Educators, who have delivered engaging sessions, bringing the Charter of Aged Care Rights to life with meaningful examples that have increased people’s knowledge about aged care rights.

We also introduced a series of ‘Bite-Sized Conversations’ on social media. These are short videos with key staff from ERA introducing our programs and services in a friendly, engaging way. It was great to see the reach and engagement of these videos, which we plan to continue together with other online initiatives.

Our stand-alone elder abuse awareness sessions will be a focus in the future, as we connect with as many older people, community members and aged care providers as possible to continue to raise awareness. Development of resources and online webinars will further support our expanding education program.

The students engaged well and asked lots of questions. Overall, they found the session to be very useful & increased their knowledge.

Author

Diversity and Inclusion

Arati Vidyasagar, Advocate, Diversity and Inclusion

We are actively pursuing relationship-building activities, information sessions, partnerships and networking with other services.

This work is guided by Elder Rights Advocacy’s Service Model Review, our Strategic Plan and the Australian Government’s Aged Care Diversity Framework, which has identified 12 attributes which could increase vulnerability. These are our priority areas for outreach.

Consumer Voices

We participated in a project called Consumer Voices, which produced a series of videos on Aged Care Services for older people from culturally & linguistically diverse backgrounds. The videos were produced by the Centre for Cultural Diversity in Ageing and Red Hat Films, with support from Australian Multicultural Community Services & Elder Rights Advocacy.

The videos have been translated into:

English, Arabic, Simplified Chinese, Traditional Chinese, Croatian, Farsi, Greek, Hindi, Italian, Macedonian, Nepali, Russian, Serbian, Spanish, Urdu & Vietnamese

These videos are available to watch online

Watch here
Ya Yapaneyepuk Aboriginal Cultural Awareness Forum

Elder Rights Advocacy had an information stall at the Ya Yapaneyepuk Aboriginal Cultural Awareness Forum held on 5–6 April 2022 in Moama (Yorta Yorta Country): ‘a deadly initiative of Vicki Walker Aboriginal Development Officer for Loddon Mallee and Hume’. The forum was targeted to CHSP providers in Loddon Mallee and Hume regions and designed for sector support and development.

Our Purpose.

Elder Rights Advocacy (ERA) promotes the human rights of all older people. We work with and for older people and their representatives, educating the community, advocating for, empowering and supporting older people to achieve the support they want.

Our Vision.

A diverse, vibrant, multicultural community, where older people are respected, heard and well- informed, and can exercise their rights and responsibilities with confidence.

Our Values.

We reflect the following values in all our work with older people:
Respect • Partnership • Empowerment • Integrity • Inclusiveness • Responsiveness

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